Privacy Policy

When using our website, you have the option to provide your personal information for certain requests. Please click on your area of interest and learn more:

1.1 Website visitors (cookies)

When you use Ascendis Pharma’s website, personal information related to your online behavior and your IP address may be collected through cookies.

The processing of personal information in relation to necessary cookies is based on an agreement between you and Ascendis Pharma to be able to use the functions of the website (GDPR article 6(1)(b)). The processing of personal information in relation to statistical and preference cookies is based on our legitimate interest in offering you the best possible products and services (GDPR article 6(1)(f)). The processing of personal information in relation to marketing cookies, also based on your preferences, is based on your prior consent (GDPR article 6(1)(a)).

In addition, Ascendis Pharma will always obtain a valid cookie consent, in accordance with the EU cookie executive order, before cookies are placed on your device.

To be able to process personal information in connection with cookies for the above purposes, we may provide access to your personal information for third parties who, on the basis of a contractual relationship with Ascendis Pharma, provide relevant services, e.g. IT suppliers, analytics companies and suppliers of marketing material. Under certain circumstances Ascendis Pharma will act as a joint controller with the third parties. For more information on the role of the third parties, deletion of cookies, withdrawal of consent etc., please refer to Ascendis Pharma’s Cookie Statement and the cookie pop-up window: https://ascendispharma.com/privacy-policy/#cookies

1.2 General Contact Information

On the Contact Us section you can see the contact information for all our offices, and you are also able to contact us by sending inquiries to [email protected].

Except where specifically retained, the normal practice is to delete these questions, save for the normal back-up of the system, after responding to the request.

It is also possible to contact our Medical Affairs team on [email protected].

Emails received by the Medical Affairs team will be circulated to the appropriate people within Ascendis Pharma with the expertise to address the questions asked. The questions may be retained by Ascendis Pharma if they are relevant for present or future activities of Ascendis Pharma or where there is a legal requirement to retain such questions.

What Personal Information does Ascendis Pharma collect and why?

• Email and the personal information you provide in your email.

We process this information for the following purposes:

• To review, assess and answer your question(s).

1.3 Investor & News

The Investor Contact section (IR contact) provides you with a form inviting you to send any investor relations requests.

The recipient of this form is the Ascendis Pharma CFO, who will respond and, if relevant, involve other employees within Ascendis Pharma.

Except where specifically retained, and if necessary for present or future activities of Ascendis Pharma, the normal practice is to delete the form and any related personal information, save for the normal back-up of the system, after responding to the request.

What Personal Information does Ascendis Pharma collect and why?

• Depending on the fields you fill in, we may collect: first and last name, email, title, company, investor type, country, workplace, fax, home phone, and comments/questions.
• News alert: email.

We process this information for the following purposes:

• Managing our relationship with you by answering your request.
• Providing you with the relevant news about Ascendis Pharma.

When signing up to automatically receive Ascendis Pharma financial information by use of the Email Alerts section your email will be sent to West LLC that manages all news for Ascendis Pharma.

1.4 Use of this Website by Minors

We do not intend for our websites to be used by anyone under the age of 18.

You may sign up to receive communications from Ascendis Pharma via our website and other channels.

What Personal Information does Ascendis Pharma collect and why?

When you sign up for receiving communications, we register your name and email address that you provide in this connection. We will always obtain your explicit consent if you provide us with any health information when you sign up for communications.

We use the information to provide you with the communications you sign up for, statistics, analytics and reporting.

The legal bases for processing your personal information are consent in accordance with the GDPR article 6(1)(a) to send communications and our legitimate interest in accordance with the GDPR article6(1)(f) to perform statistics, analytics and reporting, The legal basis for processing your health information is explicit consent in accordance with the GDPR article 9(2)(a) and 6(1)(a).

Who does Ascendis Pharma share my Personal Information with?

Your personal information is shared with our data processors that assist us with obtaining your consent and providing you with communications you have signed up for, as well as our system hosting provider.

Your personal information will not be shared with any third parties that are not acting as data processors on behalf of Ascendis Pharma.

Retention/deletion of personal information

Your personal information will be deleted when no longer necessary to fulfill the purposes stated above. Information that is necessary to send communications will be kept for 2 years after you have opted out to receive communications. Your health information will be deleted shortly after you opt out. Statistical data may however be processed in anonymized form for a longer period.

At Ascendis Pharma we conduct clinical trials and the protection of personal information is of high importance to us.

We will process personal information on subjects participating in the clinical trials as well as clinical site personnel working in the studies.

In our Subject Information and Consent Form we provide persons participating in our clinical trials with relevant information about our use and processing of their personal information.

Such personal information will be kept in accordance with regulatory requirements for clinical trials, i.e., up to 2 years after the last marketing application which may happen more than 25 years from collection of such personal information.

What Personal Information does Ascendis Pharma collect and why?

Subjects participating in the clinical trials

The personal information collected depends on the specific clinical trial, but may include:

• Ordinary personal information such as your sex, date of birth, body weight and height.
• Special categories of personal information: your ethnicity, your medical data, including your medical history, scans, blood samples, biopsies and your health status and information about your use of the trial medicine, the effect it has on you, and its potential side effects etc.

We process this information for the following purposes:

• The personal information is collected and processed to support marketing authorization applications.

Ascendis Pharma will only process your personal information in a pseudonymous form. This means that a unique trial identification number will be assigned to you by the study doctor and all personal information shared with Ascendis Pharma will only be linked to this unique trial identification number. Ascendis Pharma will not know your name.

The purpose of processing your personal information in connection with the study is our legitimate interests in developing, improving and marketing pharmaceutical products in accordance with the GDPR article 6(1)(f). We also need to process your personal information for the purpose of complying with mandatory legal and regulatory requirements applicable to the conduct of a clinical trial in accordance with GDPR articles 6(1)(c) and 9(2)(b). These purposes combined with the necessity to conduct clinical trials for ensuring high standards of quality and safety of health care and of medicinal products or medical devices (see article 9(2)(i) in the GDPR) form the legal basis for the collection and use of your personal information.

Clinical site personnel

We process the following information regarding the clinical site personnel:

• Name, workplace, work address, work e-mail, work phone number, job title
• CV
• Financial disclosure

We process this information for the following purposes:

• Confirm your qualifications and experience. We do this in order to comply with the suitability requirements for individuals conducting trials under clinical trials legislation;
• Communicate about the clinical study;
• Comply with financial reporting requirements under the US Sunshine Act, EFPIA Disclosure Code and/or other local laws in respect of the payments made for the services provided;
• Collect, process, store and retain the personal information for the time it is required under clinical study legislation which may be up to 25 years depending on country regulations;
• Management and administration purposes.

We primarily process your personal information which is necessary to fulfill the contract in accordance with the GDPR 6(1)(c). For clinical personnel we do not directly engage with as part of the CTA, the legal basis for processing personal information is our legitimate interest in management and administration purposes relating to the study in accordance with the GDPR article 6(1)(f). Further, we process your information for the proper performance of the clinical study to required standards and in order to meet legal obligations set out in clinical trials law, transparency laws and associated regulations in accordance with the GDPR section 6(1)(c).

Who does Ascendis Pharma share my Personal Information with?

Subjects participating in the clinical trials

If required, we may disclose your personal information to the appropriate regulatory authorities, auditors and ethics committees in accordance with the GDPR sections 6(1)(c) and 9(2)(b) as well as for the purpose of the study in accordance with article 9(2)(i).

There may also be a need for some of your personal information to be shared with a service provider on the study, for example, to conduct training with you.  No company is allowed to use your personal information other than relating to this clinical study and must keep it confidential.

Clinical site personnel

If required, we may disclose your personal information to the appropriate regulatory authorities, auditors and ethics committees in accordance with the GDPR section 6(1)(c).

There may also be a need for some of your personal information to be shared with a service provider on the study, for example, to conduct training with you.  No company is allowed to use your personal information other than relating to this clinical study and must keep it confidential.

What Personal Information does Ascendis Pharma collect and why?
We process the information that you, your family, legal representative or health care professionals provide directly to us in relation to reporting of adverse events/adverse drug reaction. If the adverse events/adverse drug reaction have been reported to one of vendors (including data processors), we may also receive adverse event/adverse drug reaction reporting’s from these parties.

Depending on your role (category of data subject), we process your personal information for different purposes and therefore with different legal bases:

Patient subject to adverse events/adverse drug reactions:
When processing personal information of the patient subject to the adverse event/adverse drug reaction, we process the following types of data: initials, gender, age, medical history, type of medicine, sickness, and other relevant medical data that may be contained in the reporting. The purpose of this processing is the fulfillment of our legal obligation to file a report on adverse events/adverse drug reactions in accordance with the GDPR article 6(1)(c) and article 9(2)(i), cf. the Danish Data Protection Act section 7(3).

Reporter of adverse events/adverse drug reactions: 
If you are the reporter of adverse events/adverse drug reactions, we may process your full name, professional information, contact data (i.e. phone number, address and/or email). The purpose of this processing is the fulfillment of our legal obligation to file a reporting on adverse events/adverse drug reaction, hereunder our legitimate interest in identifying and/or contacting you as the reporter of the adverse events/adverse drug reactions, in accordance with the GDPR article 6(1)(f) and article 6(1)(c).

Who does Ascendis Pharma share my Personal Information with?

In order to pursue the above listed purposes your personal information may be made available to third party data processors (service providers) providing relevant services under contract to Ascendis Pharma. Such service providers will only process the personal information in accordance with our instructions, hereunder for reporting’s on adverse events/adverse drug reactions by receiving them, processing the content, etc. and providing IT services.

Some of your personal information will be disclosed to other companies within the Ascendis Pharma group acting as separate data controllers for administration purposes, but only if these have relevance for the processing of the adverse events/adverse drug reactions in question. Certain personal information will also be disclosed to governmental and other regulatory authorities where required by law. The legal bases for such disclosure are the GDPR articles 6(1)(c) and 9(2)(i) cf. the Danish Data Protection Act section 7(3). Furthermore, we may disclose your personal information to our external lawyers and the courts if the processing is necessary for our legitimate interest in establishing, exercising or defending legal claims in accordance with the GDPR article 6(1)(f) and the GDPR article 9(2)(f).

Retention/deletion of personal information

We will delete your personal information when we no longer need to process them in relation to one or more of the purposes set out above, hereunder if we are under a legal obligation to retain the data. However, we will not keep the data longer than 10 years after expiration of marketing authorization except where the data may be processed and stored for a longer period in anonymised form in order for us to improve the pharmaceutical products.

At Ascendis Pharma we collaborate with third party providers and partners.

What Personal Information does Ascendis Pharma collect and why?
Depending on the interaction we have with you or your employer, we may collect and process the following categories of personal information:

• Work contact details (such as name, work mobile phone, job title).
• Contract terms and signature.
• Billing details and payments.
• Information about ordering and performance of services.
• Work product.
• CVs and other qualification records (only applicable to some).
• Training documentations (primarily GxP related and only applicable to some).
• Relation management information.

We process this information for the following purposes:

• The continuous business relationship between Ascendis Pharma and you or your employer.
• Compliance with security, safety and product quality requirements.

The processing of your personal information is either based on GDPR article 6(1)(b) (necessary for the performance of a contract between the company that you represent and Ascendis Pharma), GDPR article 6(1)(c) (e.g. legal obligation that follows from bookkeeping legislation) and GDPR article 6(1)(f) (our legitimate interest in being able to run our business and to be able to manage Ascendis Pharma’s business relationship, including being able to communicate with you).

Who does Ascendis Pharma share my Personal Information with?

In order to pursue the above listed purposes, your personal information may be made available to third party data processors (service providers) providing relevant services under contract to Ascendis Pharma. Such service providers will only process the personal information in accordance with our instructions, hereunder in order to provide IT services.

Some of your personal information may be disclosed to other companies within the Ascendis Pharma group acting as separate data controllers when it is necessary in order to fulfill the contract (GDPR article 6(1)(b)). Furthermore, we may disclose your personal information to our external lawyers and the courts if the processing is necessary for our legitimate interest in establishing, exercising or defending legal claims in accordance with the GDPR article 6(1)(f).

Retention/deletion of personal information

Any personal information collected about the employees of these companies will be retained for as long as we have a contractual relationship with their employer and for up to two years after providing the products / services or after termination of a contract.

We may however be required to keep some of your personal information for a longer period to fulfill legal requirements. For instance, bookkeeping material will be stored in 5 years from the closing of the current financial year and GxP documentation may be kept for up to 30 years.

At Ascendis Pharma we collaborate and interact with Healthcare Professionals and other stakeholders, such as payors and other business partners, to advance our business objectives and gain valuable insights.

What Personal Information does Ascendis Pharma collect and why?
Depending on the interaction we have with you and your country of practice, we may collect and process the following categories of personal information:

• Personal information such as your name, age, gender and contact details.
• Work contact details (such as name, work mobile phone, job title).
• Professional information such as your place of practice, job title, National Provider Identifier (NPI), license number, the medical field in which you are active, your professional qualifications and scientific activities (such as previous clinical trial experience, and participation in past or pending research studies with Ascendis Pharma and other companies), publication of academic or scientific research and articles, and membership in associations and boards, etc.
• Information on interactions with Ascendis Pharma, such as what kind of meetings we have held, topics discussed, your knowledge of and questions you have had on our business and products, what kind of material we have displayed to you and any feedback that you have provided, as well as your opinions and routines on prescribing, routines regarding your patients and diagnosis, and similar information.
• Transfer of value.
• Contract terms and signature.
• Billing details and payments.
• CVs and other qualification records (only applicable to some).

We process this information for the following purposes:

• Managing our relationship with you, also to plan potential collaboration, contact, visits, follow-ups and meetings.
• To comply with financial reporting requirements under the US Sunshine Act, EFPIA Disclosure Code and/or other local laws in respect of the payments made for the services provided;
• To help evaluate the information we provide to you and ensure that it is relevant given your expertise, interests and preferences.
• To understand your scientific-therapeutic approach and satisfaction with Ascendis Pharma.

We collect information about you from a variety of sources, including directly from you and from:

• Documents or forms that you provide to participate in Ascendis Pharma-sponsored or -supported initiatives, such as Ascendis Pharma-sponsored clinical research and development activities, or in other contexts.
• Publicly available sources.
• Online and other databases and websites, which may be managed by third parties.

The legal bases for processing your Personal Information is based on our legitimate interest to pursue the above purposes of maintaining our relationship with, evaluating information we provide to you, and understanding your scientific-therapeutic approach in accordance with GDPR article 6(1)(f), GDPR article 6(1)(b) if the information is necessary to conclude agreements/contracts with you or GDPR article 6(1)(c) if necessary for compliance with legal obligations to which Ascendis Pharma is subject.

Ascendis Pharma engages with patients, caregivers and caregiver organizations to provide support and education of these groups.

What Personal Information does Ascendis Pharma collect and why?
Depending on the interaction we have with you, we may collect and process the following categories of personal information:

• Personal information such as name, contact information, personal opinions and preferences.
• Financial information and insurance coverage
• Health information

We process the personal information for the purposes of engagement, support, and education. The legal basis for processing your personal information is our legitimate interest to provide support and education in accordance with GDPR article 6(1)(f) and the necessity to process your personal information to conclude contracts/agreements in accordance with GDPR article 6(1)(b).

We will always obtain your consent to process your health information in accordance with GDPR articles 9(2)(a) and 6(1)(a).

Retention/deletion of personal information

We will store your personal information as long as it is necessary in order to fulfill the contract and up to two years after providing the products / services or after termination of a contract.

Bookkeeping material will be stored in 5 years from the closing of the current financial year.

Ascendis Pharma uses the job site Workable, an online application provided by Workable Software Limited, USA, to assist with our recruitment process.

Where you apply for a job opening through a third party job portal, this portal may collect your consent, which is freely given by you during the application process, to disclose your personal information to the job portal owner and Ascendis Pharma.

You do not have to provide the requested information, but it might affect your application if you do not.

What Personal Information does Ascendis Pharma collect and why?

Personal Information Provided by You

We may collect personal information from you at the application stage, when shortlisting candidates for an interview, during the interview and the assessment of your profile for the position, and when making a conditional and/or final employment offer. We may perform pre-employment background and reference checks with your permission and may also perform sanctions screening. All checks/screenings are carried out in a fair and consistent manner and will be limited to information that is directly relevant to the position being applied for and in pursuance of our legitimate business interests.

Specifically, we may collect the following information:

• Personal information, including name, contact details, and photo, if provided by you.
• Previous experience and employment entitlements, education, qualifications, CV and answers to questions relevant to the position you have applied for.
• Information provided when completing tests or profile questionnaires and/or attending an interview.
• Proof of your identity and qualifications, criminal records if relevant, referrals and health information where we are legally obligated to collect it.
• Details of your visits to Workable’s Website including, but not limited to, traffic data, location data, weblogs and other communication data, the site that referred you to Workable’s Website and the resources that you access.
• Application history for jobs at Ascendis Pharma.

Personal information about your physical or mental health, alleged commission or conviction of criminal offences, and trade union membership are considered “sensitive” personal information under applicable data privacy laws. We will only process such personal information if you have either given your explicit consent, we are legally required or allowed to collect and process it, or you have deliberately made it public. We will only request such sensitive personal information that is necessary, proportionate and in pursuance of our legitimate business interests. By providing any sensitive personal information you explicitly agree that we may collect and use it in accordance with this Privacy Notice.

Personal Information from Other Sources

Workable provides Ascendis Pharma with the facility to link the personal information you provide to Ascendis Pharma, with other publicly available information about you that you have published on the Internet – this may include sources such as LinkedIn and other social media profiles.

Workable’s technology allows Ascendis Pharma to search various databases – some publicly available and others not, which may include your personal information (including your CV), to find possible candidates to fill job openings. Where we find you in this way, we will obtain your personal information from these sources.

Ascendis Pharma may also receive your personal information from a third party who recommends you as a candidate for a specific job opening or for our business more generally.

Where you have applied for a job opening through a third party job portal, and where you have consented to this disclosure, Ascendis Pharma will disclose to the third party job portal provider certain personal information that Ascendis Pharma holds, including but not limited to a unique identifier used by the job portal provider to identify you, and information about your progress through our hiring process for the applicable job opening, as well as tangible, intangible, visual, electronic, present, or future information that we hold about you, such as your name, contact details and other information involving analysis of data relating to you as an applicant for employment (collectively “Disposition Data”). The third party job portal’s privacy notice in respect of its use of the Disposition Data is available on the third party job portal provider’s website.

Where you have applied to a job opening through another provider, Ascendis Pharma may disclose personal information like the Disposition Data defined above to such provider. The provider shall be the data controller of this personal information and shall therefore be responsible for complying with all applicable law in respect of the use of that personal information following its transfer by Ascendis Pharma.

We process this information for the following purposes:

The information you provide during the recruitment process is used to assess your suitability for employment. Our use of this information is based on our legitimate business interest in recruitment of staff for our business.

If you are successful, the personal information you provide during the application process will be securely retained by us as part of your employee file for the duration of your employment and after termination for as long as required by applicable law. Your personal information is stored on our secure servers within the European Economic Area (“EEA”) and the US.

The processing of your personal information is primarily based on GDPR article 6(1)(b) (necessary for the conclusion of a contract between you and Ascendis Pharma). Further, we process your personal information based on our legal obligations in accordance with GDPR article 6(1)(c) (e.g. legal obligations that follow from GxP regulation). We also process your personal information based on GDPR article 6(1)(f) (our legitimate interest) in connection with personality and competence tests and assessments.

The Personal Information we obtain from other sources – e.g. social media – is based on our legitimate interest in accordance with GDPR article 6(1)(f). If you have manifestly made public special categories of data (sensitive data), we may also process such data based on GDPR articles 9(2)(e) and 6(1)(f).

We will generally obtain your consent in accordance with the GDPR article 6(1)(a) to collect references, but we may, based on a specific assessment, do so based on our legitimate interest in accordance with GDPR article 6(1)(f) and the Danish Data Protection Act section 12(3).

For Danish applicants only: Your Personal Information relating to criminal convictions is based on the Danish Data Protection Act section 8(3), cf. GDPR article 10.

For US applicants only: We process personal information regarding your ethnicity to comply with our legal obligation to document diversity, etc.

If you are unsuccessful at any stage of the recruitment process, the information you have provided will be securely retained for up to 6 months from the closure of the recruitment campaign. We retain your information in case any queries or issues arise in relation to the recruitment process, and we need the information to respond to such issues or queries, and/or if a suitable position were to arise at Ascendis Pharma within that time period which we may invite you to apply for.

Automated Decision-making/Profiling

Ascendis Pharma may use Workable’s technology to select appropriate candidates for us to consider based on criteria expressly identified by us, or typical in relation to the position for which you have applied. The process of finding suitable candidates is automatic, however, any decision as to who Ascendis Pharma will hire to fill the position will be made by Ascendis Pharma staff.

Who does Ascendis Pharma share my Personal Information with?

• Workable Software Limited, USA, the provider of our job site.
• Third party recruitment agencies contracted to assist us with the vetting of job applicants.
• Third party assessment vendors contracted to perform assessments as part of the recruitment process.
• Our background check provider

Where you apply for a position via the application function on another job site, you should note that the relevant provider of the job site may retain your personal information and may also collect information from Ascendis Pharma in respect of the progress of your application. Any use by the job site provider of your personal information will be in accordance with the job site provider’s Privacy Notice.

July 2022